Please help my nephew!

[Uneducated Guess]

A few days ago, my nephew, 18 month old Lucas, was diagnosed with Hemophagocytic lymphohistiocytosis, or HLH for short. HLH is a rare autoimmune blood disorder that affects mostly children and occurs in about 1 out of every 50,000. It's not cancerous but is treated nearly the same way. He will be going through chemotherapy, steroid treatments and, if it's found to be genetic, will ultimately need a bone marrow transplant. The mortality rate is between 30-50%.

As of right now, my sister, her husband and Lucas are at Seattle children's hospital and Lucas began his treatment yesterday with his first round of chemo. They will be there for a minimum of 4 weeks and outpatient treatment will last anywhere from 9 to 30 weeks depending on how he responds.

I'm reaching out to everyone I possibly can to help my sister and her family out right now. Please keep Lucas in your thoughts and prayers.

I've also started a fundraiser to help with the medical bills and other expenses while they are out of work so if you would like to help, any donation would be greatly appreciated. Thank you for taking to the time to read this and God bless. Below is the link for the fundraiser.

http://www.youcaring.com/fundraiser_...ensefundraiser

[CarolinaChick]

[Uneducated Guess]

Originally Posted by CarolinaChick

Thank you.

My sister has started a facebook page so that others may keep themselves updated with his progress through treatment.

https://www.facebook.com/LucasFightW...user=636585473

[CarolinaChick]

Originally Posted by Uneducated Guess

Thank you.

My sister has started a facebook page so that others may keep themselves updated with his progress through treatment.

https://www.facebook.com/LucasFightW...user=636585473

Thank you for sharing the FB link! I look forward to keeping up with his progress & healing!

[heRS]

Seattle has excellent hospitals. Lucas is in safe hands, I'll keep him in my prayers.

[Uneducated Guess]

Originally Posted by heRS

Seattle has excellent hospitals. Lucas is in safe hands, I'll keep him in my prayers.

Thank you.

[01pewterz28]

Keeping this little guy in our prayers so sad to see a child in pain :(

[Uneducated Guess]

Originally Posted by 01pewterz28

Keeping this little guy in our prayers so sad to see a child in pain :(

[Ladybugsmom]

Originally Posted by heRS

Seattle has excellent hospitals. Lucas is in safe hands, I'll keep him in my prayers.

I have a friend who has spent a LOT of time at Seattle Children's, with her daughter - she knows a ton of people there, and may be able to help point your sis in the right direction for anything they need, all the way down to a friendly ear to listen. I will pass the FB link on to her.

[LIM3]

prayers are with them

[Uneducated Guess]

Originally Posted by Ladybugsmom

I have a friend who has spent a LOT of time at Seattle Children's, with her daughter - she knows a ton of people there, and may be able to help point your sis in the right direction for anything they need, all the way down to a friendly ear to listen. I will pass the FB link on to her.

Awesome. Thank you! The Ronald McDonald house has accepted their request to stay there for the duration of the time they are in Seattle. If all goes well with his second round of chemo tomorrow, he will begin outpatient treatment on Wednesday and could be going back to Montana in as little as 4 weeks where he will finish his treatment.

[Ladybugsmom]

My friend sent them a message via the FB page. Her name is Stacey, tell your sis that she is a wonderful lady, who can be their Seattle connection for the duration...

[Uneducated Guess]

Originally Posted by Ladybugsmom

My friend sent them a message via the FB page. Her name is Stacey, tell your sis that she is a wonderful lady, who can be their Seattle connection for the duration...

Will do. Thanks again.

[CarolinaChick]

Originally Posted by Uneducated Guess

Awesome. Thank you! The Ronald McDonald house has accepted their request to stay there for the duration of the time they are in Seattle. If all goes well with his second round of chemo tomorrow, he will begin outpatient treatment on Wednesday and could be going back to Montana in as little as 4 weeks where he will finish his treatment.

Fantastic!!